The boys had their first eye exam this week and it went fantastic. The opthalmologist was surprised and very
pleased with their eyes. Both boys' eyes are far more developed than their gestational age (34 weeks) and they have no signs of eye disease!
Lucas had a stable night, thank goodness. Yesterday the day nurse, Becky (love her!), showed us some warning signs that she has picked up with Luke when he starts getting air leaks into his stomach. This is what is causing the sudden crashes. Since he has the TE fistula, not only can things go into his lungs from his stomach, but air can also go into his stomach from his lungs. They have his G-tube set on suction (which sparked a huge argument between the surgeons and neonatologists), but it is not getting the air out fast enough. So we look for signs like a swollen belly and they draw out more air with a syringe. Yesterday Becky told me she drew out over 1000 ccs of air. That is over a liter. So it is evident more than ever that he really needs to have this operation to fix the TE fistula.
Speaking of Becky, I wish this nurse could be here 24/7. She is wonderful. I can tell she loves her job and these babies. While she was on vacation last week, she still called everyday to check on Miller and Lucas. She is encouraging without being overbearing.
Here's hoping and praying for a good day today!
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