Thursday, July 4, 2013

Time

It's very hard to find the time to blog these days with 2 boys at home and 1 in the NICU, but I'm going to try to be better at it.  Miller is doing great at home.  He is eating like a champ.  Man, this kid loves to eat!  He is growing so much and changing each day.  He always looks so serious except for a few moments a day when he grins really big.  Declan is completely fascinated with Miller.  It is so sweet.

Lucas is still having a hard time.  We learned that he is currently the sickest baby in the LeBonheur NICU which made my stomach turn when I heard that.  He may be the sickest baby, but I guarantee he is the toughest baby there!  He is currently battling a couple of different infections, persistent pulmonary hypertension, barium insult to his right lung, possible pneumothorax, grade 1 IVH (mild bleeding of the brain, but this can be reversible and is to be expected of a preemie who has crashed so many times), and esophageal atresia.  So, yeah, he has a lot going on.  He has been on small feedings of breast milk for a few days now and is doing well with that.  They wanted to fortify the breast milk with human milk fortifier for extra calories, but we declined that for now since it increases his chance of getting NEC.  I do not want to take any chances of him getting NEC.  NEC is absolutely terrifying and a very dangerous infection.  Miller had NEC, but thankfully only needed a round of antibiotics to treat it.

For all of you who are praying for Lucas, we thank you from the bottom of our hearts.  He needs a lot of prayers.  Please pray that the infections respond to the antibiotics, for a way to treat the pulmonary hypertension, for his lungs to heal, and that he doesn't get NEC, as these are the biggest issues he is facing.

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