Random thoughts

We went to church today for the first time in several weeks.  We are part of a wonderful church.  So many people, even people we have never met, came up to us and told us they have been praying for our family.  That really touched me.  Declan went to the nursery today.  I snuck out of service to go check on him at some point and saw him sharing his cheerios with another boy in his nursery class.  He is such a sweet little boy.  Every day when we go to the hospital he starts saying "bru-ba" (brother) when we get to the boys' rooms.  It is so sweet.  He got a helicopter toy for his birthday and I heard him playing in the floor imitating the helicopter sounds.

After church we headed down to the hospital.  Of course as soon as we get there, my sweet Declan went crazy.  He was grumpy and crying and just CRAZY.  Miller wanted nothing to do with his bottle today when I tried to feed him.  One of the nurse practitioners said today that the feeding situation is basically the only thing keeping Miller from coming home.  He is gaining weight consistently.  He weighs 4 lbs 15 oz now.  Now he just needs to take a bottle consistently at every feeding.  He is still ahead of his gestational age for feedings.  Most babies don't get the bottle thing until 36-38 week mark and he will be 36 weeks tomorrow.  I'm just ready for Miller man to get to come home.

Lucas is still resting and recovering.  They are weening him off his pain medications over the next few days.  The next steps will be weening off the ventilator and begin feedings through his MIC-KEY button.  When I went into his room today, he was wide awake and looking around.  He has been so sedated lately that I rarely see him with his eyes open.  It was so sweet to see him looking at me while I talked to him.  During his operation this week, they gave him a new kind of feeding tube called a MIC-KEY button.  It is a type of g-tube that the nurses say is easier to clean and use.  They all love the MIC-KEY buttons.  After some googling, I discovered several websites that make cute little MIC-KEY button covers.  I found some clothes that have flaps that snap over the g-tube site too.

We have all done some talking and we want to make sure Lucas has as much of a normal childhood as possible.  Yes, he does have special needs.  But is still a little boy and I will do everything possible to make sure he gets to lead a safe and normal childhood.  Lucas is so amazing.  He has changed my life in so many ways.  He is so beautiful.

Tomorrow I start back to work so I'm sure this week will be crazy busy.  It will definitely take some time to get a good schedule down.  Working 10 hour days Monday-Thursday, taking care of a very active 1 year old, going to see the twins every day, and keeping up with things like laundry and sleep....  It is going to be so busy!